Terminal Illness & Debt — What the Law Says
A comprehensive analysis of (i) what Australian law considers "terminal illness", (ii) what creditors are required to do when a debtor is terminally ill, (iii) what remains within creditor discretion, and (iv) what happens to unresolved debts on death. Prepared to support the Constitution, ACNC application, DGR endorsement and beneficiary-facing communications for Life Without Debt Ltd.
This memo is the evidentiary spine for three things: (a) the ACNC application's Description of Activities and Public Benefit memo (because a charity has to show that the need it fills is real and not already covered); (b) the DGR/PBI application's benevolent-relief element (because we have to demonstrate that terminal-illness-plus-debt is a specific class of distress "beyond ordinary suffering" — the Cairnmillar test); and (c) beneficiary-facing scripts so LWD case managers can tell a dying person, accurately and in plain English, what rights they already have — and where the law leaves them with nothing.
1. What Australian law considers "terminal illness"
There is no single statutory definition of "terminal illness" in Australian law. Different Acts and instruments define it differently for different purposes. The three definitions that matter most for LWD's beneficiary class are:
1.1 The superannuation definition — SIS Regulation 6.01A (the strictest)
Superannuation Industry (Supervision) Regulations 1994 (Cth), regulation 6.01A, defines a "terminal medical condition" as existing when all of the following are true:
Verbatim: "(a) two registered medical practitioners have certified, jointly or separately, that the person suffers from an illness, or has incurred an injury, that is likely to result in the death of the person within a period (the certification period) that ends not more than 24 months after the date of the certification; (b) at least one of the registered medical practitioners is a specialist practising in an area related to the illness or injury suffered by the person; (c) [the certification period has not ended]."
— SIS Regulations reg 6.01A
The consequence of meeting this definition is significant: the person can withdraw their entire superannuation balance tax-free as a lump sum (Income Tax Assessment Act 1997 (Cth), s.303-10), regardless of preservation age. This is one of the largest sources of pre-death cash available to LWD beneficiaries and directly drives the case-intervention timing decisions.
1.2 The life-insurance definition — usually contractual (24 months, sometimes 12)
Life-insurance policies and their group counterparts inside super funds define "terminal illness" for the purpose of a terminal-illness benefit — an early lump-sum payment of the death benefit while the insured is still alive. The common formulations are:
- The insured is suffering from an illness or injury likely to result in death within 24 months, certified by two medical practitioners (mirroring the SIS definition) — used by most APRA-regulated group life policies since the 2015 industry alignment; or
- The insured is suffering an illness or injury likely to result in death within 12 months — the older definition still found in some retail life-insurance policies and legacy super funds. This narrower test excludes some people who would qualify under the 24-month test and is a common cause of terminal-illness claim disputes at AFCA.
The two definitions are not equivalent. A beneficiary certified as terminal by their treating team may qualify for super release but not for a life-insurance terminal-illness benefit — or vice-versa — depending on the exact policy wording. This mismatch is the reason LWD needs financial-relief capacity that does not depend on either payout landing.
1.3 The palliative-care / clinical definition — variable
Clinical usage in the Australian health system generally refers to "terminal illness" as an advanced, progressive, life-limiting condition where death is expected within months, with prognosis increasingly certain as function declines. This is the definition used by state-funded palliative-care services, the National Palliative Care Standards, and My Aged Care assessments. It is broader and softer than the two above — it captures beneficiaries who have not yet been formally certified for super release or an insurance payout but who are already unable to work and already accumulating financial harm.
LWD's Constitution and Direct Relief Policy deliberately do not tie the beneficiary class to any one of these three definitions. Doing so would either exclude people the charity plainly intends to help (if we picked the SIS test), or expose LWD to accusations of scope creep (if we picked the clinical definition). The current drafting — "a person who has been diagnosed with a life-limiting or terminal condition" — is deliberately broader than SIS Reg 6.01A but narrower than everyday clinical usage, and is verifiable by an intake form supported by a treating-physician letter. Case managers can then apply the specific statutory definition to whichever remedy is being pursued (super release under SIS; insurance payout under the policy; hardship variation under the NCCP; etc.).
2. What creditors MUST do when a debtor is in financial hardship (regulated consumer credit)
2.1 The hardship notice — sections 72 to 75 of the National Credit Code
The National Credit Code (Schedule 1 to the National Consumer Credit Protection Act 2009 (Cth), the "NCCP Act") applies to almost every consumer credit contract in Australia — home loans, credit cards, personal loans, car loans, buy-now-pay-later contracts (from 10 June 2025), and consumer leases. For regulated contracts, the following obligations on the credit provider are statutory, not discretionary:
| Section | What the credit provider MUST do |
|---|---|
| s.72(1) | Accept a hardship notice from the debtor. The notice can be given orally or in writing — a phone call is legally sufficient. The debtor does not need to use any particular form of words, only communicate that they are unable to meet their obligations. |
| s.72(2) | Within 21 days of receiving the notice: either (a) respond substantively, or (b) request further information relevant to the decision. Failure to do either is itself a breach. |
| s.72(4) | If further information was requested and received, respond within 21 days of receipt. If further information was requested and NOT received, respond within 28 days of the original request. |
| s.72(5) | The response must state (i) whether the contract will be changed, (ii) if so, how, (iii) if not, the reasons, and (iv) that the debtor may complain to AFCA and how to do so. |
| s.73(1) | If the change defers or reduces obligations for more than 90 days, provide written notice setting out the new terms within 30 days of the agreement. |
| s.88 & s.89A | Enforcement action (issuing a default notice, commencing court proceedings, repossessing security) is suspended during the hardship-notice process. Any default notice previously issued cannot be relied on for enforcement while a hardship application is being determined. |
| NCCP Regs | Under the Regulations, a creditor cannot commence enforcement action for 14 days after refusing a hardship variation (unless the debtor made a separate request in the previous 4 months). This is a hard cooling-off period. |
A terminally-ill Australian with a regulated consumer credit contract has a statutory right to require their bank, card issuer, personal-loan lender or auto lender to consider a hardship variation — and to receive a substantive answer within a defined timeframe, with AFCA as the mandatory external-review path if refused. That right does not depend on the creditor's goodwill. It is one of LWD's core weapons on behalf of the beneficiary.
2.2 What the creditor DOES NOT have to do
This is where the law leaves substantial discretion — and it is the gap LWD is designed to fill:
- Section 72 gives a right to ask for a variation, not to receive one. The creditor is only required to grant a variation if there are "reasonable grounds" that (a) the debtor cannot meet the current obligations, and (b) they reasonably expect to meet varied obligations. Terminal illness usually satisfies (a) but often fails (b) — the debtor's income is not going to recover.
- The creditor is not required to write the debt off, even in cases of imminent death. Debt waiver on compassionate grounds is a discretionary act — see Banking Code para 180 (below).
- The creditor is not required to freeze interest. Interest often continues to accrue during a hardship arrangement, which means the debt grows during the terminal illness even while payments are paused.
- The creditor is not required to reduce the principal balance. Any "settlement" (payment of less than the full balance in full discharge of the debt) is entirely voluntary on the creditor's part. This is the transaction LWD funds most often.
- There is no NCCP hardship right for utility bills, phone bills, ATO tax debt, Centrelink debt, HECS/HELP debt, private-school-fee debt, medical/dental debt, funeral loans on non-credit terms, or unregulated commercial loans. Different, weaker regimes cover these (industry codes, ombudsmen, ATO discretions, various administrative processes) — and the collector's obligations are correspondingly more limited.
3. What creditors MUST do — Debt Collection Guideline (ASIC/ACCC RG 96)
The Debt collection guideline: for collectors and creditors (April 2021) is jointly issued by ASIC and the ACCC and applies to all debt collection activity — regulated credit and unregulated debt alike. It draws its legal force from section 12DJ of the Australian Securities and Investments Commission Act 2001 (Cth) and section 50 of the Australian Consumer Law (Sch 2 to the Competition and Consumer Act 2010 (Cth)), both of which prohibit the use of "physical force, undue harassment or coercion" in debt collection.
3.1 Specific protections for seriously-ill debtors
| RG 96 reference | Rule |
|---|---|
| Part 2, s.2(c) | "If you are aware that a debtor is unable to make meaningful and sustainable repayments towards a debt, then continuing to contact the debtor to demand payment will not be reasonable or appropriate." Chronic or long-term illness or injury is expressly named as a reason a debtor may be unable to make meaningful repayments. |
| Part 2, s.7(g) | "Do not visit the debtor's home if you know of special circumstances (for example, the debtor is seriously ill or mentally incapacitated) which would make face-to-face contact inappropriate. Leave the debtor's premises immediately if you become aware of such circumstances during the visit." |
| Part 2, s.17 | Prohibits abusive/offensive/discriminatory language; disrespectful remarks about the debtor's character, situation, financial position, physical appearance or intelligence; shaming (including via social media or workplace notification); and aggressive, threatening or intimidating manner. |
| Part 2, s.23(d) | Collectors must implement fair, documented policies for identifying vulnerable debtors — including those with mental-health conditions, those experiencing family violence, and by clear implication those with serious physical illness. |
| Part 3 | "Undue harassment" is defined as "unnecessary or excessive contact or communication with a person calculated to intimidate or demoralise, tire out or exhaust a debtor." "Coercion" involves "actual or threatened force or pressure that restricts a debtor's choice or freedom to act." Both are civil-penalty breaches under s.12DJ ASIC Act. |
| Contact frequency | The guideline sets soft caps on collector-initiated contact (e.g. no more than 3 phone contacts per week or 10 per month; no letters more than once a fortnight for the same debt). Contact volumes above this are indicators — though not conclusive proof — of undue harassment. |
ASIC has successfully brought Federal Court proceedings against debt collectors for breach of s.12DJ (see for example ASIC v Accounts Control Management Services (No 2) [2012] FCA 1290, where a debt collector was penalised for tactics including threats of imprisonment and repeated calls to an ill debtor). Penalties for corporations can now exceed $50 million per breach following the 2019 penalty uplift. When LWD's case managers tell a beneficiary "we can make them stop calling you", they mean it — the tool is s.12DJ complaint to ASIC, plus AFCA, plus the industry-code monitoring body.
4. What banks specifically must do — Banking Code of Practice 2025
The Banking Code of Practice (approved by ASIC in June 2024, in force from 28 February 2025) binds every ABA-member bank as a contractual term of their customer agreements. Enforcement is through AFCA (individual disputes) and the Banking Code Compliance Committee (systemic compliance). Key provisions for terminally-ill customers:
| Paragraph | Obligation |
|---|---|
| 52–54 | Banks commit to "take extra care" with customers experiencing vulnerability. Para 52(e) expressly names "serious illness" as a driver of vulnerability. Banks must work with the customer to find a suitable way to bank, respect privacy, and facilitate appointment of a third-party representative (which enables LWD case managers to act as the beneficiary's proxy with signed authority). |
| 167 | If the customer is in Financial Difficulty, they (or their representative) should contact the bank as soon as possible. This is the invocation point. |
| 175 | The bank will "work with you to help you find a sustainable solution to your Financial Difficulties" — the affirmative counterparty duty that anchors LWD's negotiation posture. |
| 178 | Specific tools the bank may offer: interest-only periods, loan extensions, deferral of payments, capitalising arrears, temporarily reducing or waiving fees. These are discretionary but code-anchored. |
| 180 | Debt waiver on compassionate grounds. The bank may, in exceptional circumstances, waive an unsecured personal loan or credit card debt entirely — expressly on compassionate grounds. This is the paragraph LWD negotiators will cite most often. It is discretionary — the bank does not have to agree — but it exists as a code-recognised outcome and the bank must consider it in good faith on request. |
| 190 | The bank will not sell the debt to a third party (i.e. to a specialist debt buyer) if any of the following applies: (a) the bank is actively considering the customer's financial situation, (b) the customer is complying with a hardship arrangement, or (c) the customer is experiencing ongoing vulnerability with no reasonable prospect of debt recovery. For terminally-ill customers, subparagraph (c) is directly on point. |
| 132–145 | Deceased-estate protocols. Banks must treat estate representatives with "respect and compassion", promptly secure accounts, stop and refund fees for services no longer being provided, and give clear information about what an estate representative can and cannot do. This governs how banks respond to LWD's post-death case closure work. |
Customer-Owned Banking Institutions (mutual banks, credit unions) are bound by the parallel Customer Owned Banking Code of Practice, which contains materially equivalent provisions.
5. Utilities, telcos and other essential-service creditors
Utilities and telcos are covered by industry-specific regulators and codes, not the NCCP Act. The key regimes and their hardship obligations are:
| Sector | Legal / code source | Key obligation |
|---|---|---|
| Electricity & gas (NEM states) | National Energy Retail Rules; AER Sustainable Payment Plans Framework | Retailers must offer a hardship program to residential customers unable to pay bills due to financial hardship. Disconnection is prohibited while a customer is complying with an approved payment plan or hardship program. Life-support customers face additional disconnection restrictions. |
| Water | State-specific regulation (e.g. IPART in NSW, ESC in VIC) | All jurisdictions require hardship programs; disconnection is generally prohibited for residential customers except in narrow circumstances. |
| Telecommunications | Telecommunications Consumer Protections Code (C628:2019), Part 6 | Carriers must have a documented financial-hardship policy, offer a range of options (payment plans, deferral, fee waivers), and cannot disconnect a residential customer while a payment plan is in place. TIO (Telecommunications Industry Ombudsman) provides EDR. |
| Health / medical | Public hospitals: no billing to Medicare-eligible admitted patients. Private hospitals & medical practitioners: contractual only. | No statutory hardship regime for private medical debt. Some private hospitals have compassionate-write-off policies. Private-health-insurance premium waiver / suspension on hardship is at the fund's discretion. |
| ATO tax debt | Taxation Administration Act 1953 s.255-5; ATO Practice Statement PSLA 2011/17 (Debt relief) | ATO has statutory discretion to release an individual from a tax liability on grounds of "serious hardship". Requires a Release Application (form NAT 15080). Not available to companies or partnerships. |
| HECS/HELP debt | Higher Education Support Act 2003 | Repayable only when income exceeds indexed threshold. Extinguished on death (Section 137-5) — no HECS debt ever passes to the estate. Under an application, may also be waived on serious-hardship grounds during life. |
| Centrelink overpayment debt | Social Security Act 1991 s.1237A | Services Australia has discretion to waive debt where recovery would cause "severe financial hardship". Terminal illness is a documented consideration. |
6. Enforcement pathway — RG 271 IDR + AFCA + regulators
When a creditor breaches the above obligations, the pathway is:
- Internal Dispute Resolution — under ASIC Regulatory Guide 271, financial firms must acknowledge a complaint within 24 hours and provide a final response within 21 days for complaints involving a hardship notice or default-notice postponement request (versus 30 days for standard complaints). LWD case managers will trigger this timeline explicitly in every negotiation.
- Australian Financial Complaints Authority (AFCA) — free, statutory external dispute resolution scheme. AFCA can make determinations that bind the financial firm up to $1,201,000 (as at 2025, indexed annually). AFCA membership is compulsory for all Australian Credit Licensees, AFSL holders, superannuation trustees and general insurers. Lodging an AFCA complaint freezes court enforcement — the creditor cannot obtain default judgment while the AFCA matter is open.
- ASIC / ACCC enforcement — s.12DJ ASIC Act (financial services and credit) or s.50 ACL (goods and services generally). Civil-penalty proceedings by the regulator; individual right of complaint but no direct private right of action for damages.
- Industry-code committees — Banking Code Compliance Committee, Customer-Owned Banking Code Compliance Committee, TIO, EWO (Energy & Water Ombudsman). These monitor code compliance and can require remediation.
- State fair-trading offices — for unregulated debt (below the NCCP thresholds and pre-11-2004 contracts), state consumer-protection agencies have residual jurisdiction.
- Court — as a last resort. Free legal help via community legal centres and (for social-security / immigration / consumer-credit matters) Legal Aid.
7. What happens on death — the debt does not follow the family (subject to important exceptions)
In Australia, debts do not die with the debtor. They pass to the deceased's estate. Creditors have a legal right to be paid from the estate before any beneficiary receives their inheritance. If the estate has insufficient assets, the debts are written off — they do not pass to the surviving spouse, children or other beneficiaries. This is a rule of general law and is confirmed by the succession legislation of every Australian state and territory.
7.1 The exceptions — where debt DOES follow a family member
The debt follows a survivor only in these specific circumstances:
- Joint borrowers. Where the surviving spouse or family member co-borrowed the debt (as opposed to acting as guarantor), the survivor remains liable for the whole debt — a joint and several obligation.
- Guarantors. A survivor who personally guaranteed the deceased's unsecured debt is liable for it under the guarantee.
- Secured debts on jointly-owned assets. If the family home is mortgaged jointly, the survivor takes the whole property by survivorship and the whole mortgage debt. The creditor's security interest in the property survives the death.
- Assets bequeathed subject to a debt. If a beneficiary is bequeathed an asset (e.g. a car) that secures a debt, they take the asset subject to the debt — they must either repay/refinance the debt or hand back the asset.
7.2 The order of payment from a solvent estate
Under the succession legislation of each state (e.g. NSW Probate and Administration Act 1898), the executor must apply estate assets in the following order:
- Secured debts, from the assets securing them.
- Funeral expenses.
- Testamentary and administration expenses (e.g. legal fees to obtain probate).
- Unsecured debts, on a pari passu basis (equal ranking — no unsecured creditor is preferred over another).
- Cash gifts to beneficiaries.
- Specific gifts of property to beneficiaries.
7.3 Insolvent estates — where LWD's pre-death work matters most
If the estate is insolvent (debts exceed assets):
- The executor may negotiate write-offs with creditors — but creditors are not obliged to agree, and if the total unsecured debt to any single creditor exceeds $10,000, that creditor can apply to the Federal Circuit and Family Court for a bankruptcy trustee to be appointed to the estate.
- Once a bankruptcy trustee is appointed, the estate is administered under Part XI of the Bankruptcy Act 1966. Assets pass to the trustee, are liquidated, and creditors are paid a proportional dividend on their debts. Any shortfall is written off at that point — but not before.
- The bankruptcy of the estate is a matter of public record. It can affect the surviving spouse's own credit rating if their credit files show shared debts.
7.4 Assets that DO NOT pass into the estate
Some categories of asset bypass the estate entirely and go directly to nominated beneficiaries. These are not available to pay the deceased's unsecured creditors:
- Superannuation death benefits paid to a binding-nominated beneficiary (SIS Act s.59).
- Life-insurance proceeds paid to a nominated policy beneficiary.
- Assets held as joint tenants (bank accounts, real estate) — pass by survivorship.
- Assets held in a testamentary or family trust of which the deceased was not a beneficial owner.
The general rule ("debts die with the estate") sounds comforting but is misleading in three ways that matter to LWD's beneficiaries:
- Any secured debt on the family home survives. The mortgagee bank can force sale of the home over the surviving spouse's objection unless the mortgage is discharged. Refinancing on the survivor's post-death income is often impossible.
- Any joint debt or guaranteed debt survives. Credit-card debt where the spouse is a joint holder — not just an additional cardholder — survives.
- The process of dying with debt is itself the harm. Collector calls, default notices, threatened repossession of the car, threatened disconnection of electricity — these happen during the terminal illness, not after death. Even where debt would eventually be written off from an insolvent estate, the beneficiary and their family suffer months of avoidable distress that a well-timed hardship application, negotiated settlement, or targeted direct-relief payment can prevent.
8. The gap LWD fills — evidence for the ACNC / DGR "distress" test
Putting all of the above together, this is the evidence base LWD relies on to establish that a terminally-ill Australian in debt suffers "distress beyond ordinary suffering" — the Cairnmillar test the ATO Commissioner's PBI Interpretation Statement applies at paragraph 32:
- The statutory rights exist (NCCP s.72, RG 96, Banking Code) but require the beneficiary or their agent to invoke them, articulate the case, follow up within tight timeframes, and escalate to AFCA if refused. Terminally-ill people, by definition, do not have the time, energy or cognitive bandwidth for this process during their final months.
- The most powerful outcomes (interest freezes, principal reductions, full compassionate write-offs under Banking Code para 180) are discretionary, not mandatory. Getting them requires professional negotiation posture, evidence packaging and creditor familiarity that ordinary consumers do not possess.
- The gaps in statutory coverage (utilities in some cases, private medical, funeral costs, unregulated small commercial loans, informal family loans) leave beneficiaries with debts on which they have no statutory hardship rights at all — only whatever the creditor voluntarily agrees to.
- Post-death protection is real but limited: joint debts and secured debts on jointly-held assets survive and can cause the surviving spouse to lose the family home during acute grief.
- Free financial-counselling services (National Debt Helpline; community legal centres; Financial Counselling Australia members) are excellent but chronically capacity-constrained; their triage cannot prioritise "months to live" as a criterion; and they do not have the funds to pay the negotiated outcomes — they can only advise and advocate.
- There is no Australian charity presently combining (i) proactive intake tied to a terminal diagnosis, (ii) professional creditor negotiation on the beneficiary's behalf, and (iii) direct payment of essential living costs, negotiated settlements and residual debt discharge. This is the differentiated position LWD occupies.
The Cairnmillar "beyond ordinary suffering" threshold is comfortably met. Terminally-ill Australians face financial distress that combines (a) accelerated income loss, (b) accelerated cost increases, (c) statutory rights that are theoretical without professional help, (d) discretionary creditor conduct that varies from compassionate to predatory, and (e) time horizons measured in months, not the years within which ordinary hardship-relief pathways operate. LWD's charitable purpose is precisely calibrated to that gap.
9. Sources
- National Consumer Credit Protection Act 2009 (Cth), Schedule 1 (National Credit Code) ss.72–75, s.88, s.89A
- Superannuation Industry (Supervision) Regulations 1994 (Cth), reg 6.01A
- Income Tax Assessment Act 1997 (Cth), s.303-10 (tax-free super release on terminal medical condition)
- Australian Securities and Investments Commission Act 2001 (Cth), s.12DJ (harassment and coercion)
- Competition and Consumer Act 2010 (Cth), Schedule 2 (Australian Consumer Law), s.50
- ASIC/ACCC Regulatory Guide 96, Debt collection guideline: for collectors and creditors (April 2021)
- ASIC Regulatory Guide 271, Internal dispute resolution (September 2021)
- ASIC Regulatory Guide 209, Credit licensing: Responsible lending conduct
- Australian Banking Association, Banking Code of Practice (28 February 2025 edition), paras 52–54, 132–145, 167–190
- Customer Owned Banking Association, Customer Owned Banking Code of Practice
- Australian Energy Regulator, Sustainable Payment Plans Framework; National Energy Retail Rules Pt 2 Div 6
- Communications Alliance, Telecommunications Consumer Protections Code C628:2019
- NSW Probate and Administration Act 1898; equivalent state legislation in VIC, QLD, SA, WA, TAS, ACT, NT
- Bankruptcy Act 1966 (Cth), Part XI (administration of insolvent deceased estates)
- Higher Education Support Act 2003 (Cth), s.137-5 (HECS/HELP debt extinguishment on death)
- Taxation Administration Act 1953 (Cth) s.255-5; ATO PSLA 2011/17 (release from tax liability on serious hardship)
- Social Security Act 1991 (Cth) s.1237A (Centrelink debt waiver)
- ASIC v Accounts Control Management Services (No 2) [2012] FCA 1290 (undue harassment in debt collection)
- Redfern Legal Centre, Financial Hardship factsheet (January 2024)
- ATO, Commissioner's Interpretation Statement: Public Benevolent Institutions (29 September 2025 update), paras 32, 44–46
This memo synthesises published regulatory guidance, primary legislation and industry codes as at the date of preparation. It is intended as background research for the LWD Board and for use as evidence within the ACNC and DGR applications. It is not legal advice to any beneficiary or to LWD, and no beneficiary case should be conducted purely on the basis of this memo without file-specific advice from an appropriately qualified lawyer or financial counsellor.